Stuff I've been reading (December 2021)

By Os Keyes

Things I finished reading in December 2021:

Books and dissertations

  • Barkun, Michael. A culture of conspiracy. University of California Press, 2013.
  • Bevan, Dana Jennett. Transgender Health and Medicine: History, Practice, Research, and the Future. ABC-CLIO, 2019.
  • Bolin, Anne E. In Search of Eve: Transsexual Rites of Passage. Bergin & Garvey, 1983.
  • Bullough, Bonnie, Vern L. Bullough, and James Elias, eds. Gender blending. Prometheus Books, 1997.
  • Burns, Christine, ed. Trans Britain: Our journey from the shadows. Unbound Publishing, 2018.
  • Chaplin, Belinda. ” Why are you crying? You got what you wanted!”: Psychosocial experiences of sex reassignment surgery. Diss. Queensland University of Technology, 2016.
  • Cotten, Trystan T., ed. Hung jury: Testimonies of genital surgery by transsexual men. Transgress Press, 2012.
  • Daly, Jeanne. Evidence-based medicine and the search for a science of clinical care. Vol. 12. Univ of California Press, 2005.
  • Dillon, Sarah, and Claire Craig. Storylistening: Narrative evidence and public reasoning. Routledge, 2021.
  • Feinbloom, Deborah Heller. Transvestites & transsexuals: Mixed views. Delacorte Press, 1976.
  • Goodman, Jordan, and Anthony McElligott, eds. Useful bodies: Humans in the service of medical science in the twentieth century. JHU Press, 2003.
  • Holford, W. David. Managing knowledge in organizations: A critical pragmatic perspective. Springer Nature, 2020.
  • Holm, Marie-Louise. Fleshing out the self: Reimagining intersexed and trans embodied lives through (auto) biographical accounts of the past. Diss. Linköping University Electronic Press, 2017.
  • Jansen, Yvonne. Pragmatic Trials; The Mutual Shaping of Research and Primary Health Care Practice: An ethnographic analysis of the role the pragmatic trial fulfils in bridging the science-practice gap. 2012.
  • Kelly, Mark GE. The political philosophy of Michel Foucault. Vol. 59. Routledge, 2010.
  • MacKinnon, Kinnon Ross. Standardizing Injustice in Transition-related Medicine?: An Institutional Ethnography of How Assessment Protocols Coordinate Inequitable Access to Hormones and Surgeries in Canada. Diss. University of Toronto (Canada), 2019.
  • Meadow, Tey. Trans Kids. University of California Press, 2018.
  • Melley, Timothy. Empire of conspiracy. Cornell University Press, 2016.
  • Mol, Annemarie. The logic of care: Health and the problem of patient choice. Routledge, 2008.
  • Montgomery, Kathryn. How doctors think. Duke University Press, 2019.
  • Petryna, Adriana. When experiments travel. Princeton University Press, 2009.
  • Raj, Rupert. Dancing the Dialectic. CreateSpace, 2017.
  • Rapley, Mark. Quality of life research: A critical introduction. Sage, 2003.
  • Reis, Elizabeth. Bodies in doubt: An American history of intersex. JHU Press, 2021.
  • Taylor-Alexander, Samuel. On face transplantation: Life and ethics in experimental biomedicine. Springer, 2014.
  • Weber, Linda and Allison I. Carter. The social construction of trust. Springer Science & Business Media, 2003.
  • Yerke, Adam F. The transition experiences of two cohorts of female-to-male transsexuals: The impact of socio-cultural context. Diss. CSPS, 2008.

Papers and Chapters

  • Adams, Mary, and Christopher McKevitt. “Configuring the patient as clinical research subject in the UK national health service.” Anthropology & medicine 22.2 (2015): 138-148.
  • Armstrong, Victoria, and Norma Morris. “Boundary setting in breast cancer research: a study of the experience of women volunteer research subjects.” Sociology of health & illness 32.1 (2010): 74-88.
  • Ashley, Florence. “Accounting for research fatigue in research ethics.” Bioethics 35.3 (2021): 270-276.
  • Berg, Marc, Ruud Ter Meulen, and Masja Van den Burg. “Guidelines for appropriate care: the importance of empirical normative analysis.” Health Care Analysis 9.1 (2001): 77-99.
  • Brody, Howard, and Franklin G. Miller. “The clinician-investigator: unavoidable but manageable tension.” Kennedy Institute of Ethics Journal 13.4 (2003): 329-346.
  • Brown, Phil. “The name game: Toward a sociology of diagnosis.” The Journal of Mind and Behavior (1990): 385-406.
  • Brown, Phil. “Naming and framing: The social construction of diagnosis and illness.” Journal of health and social behavior (1995): 34-52.
  • Campbell, Nancy D., and Laura Stark. “Making up ‘vulnerable’people: human subjects and the subjective experience of medical experiment.” Towards a revival of analytical philosophy of history. Brill Rodopi, 2017. 225-253.
  • Chatterjee, Shraddha. “Transgender shifts: Notes on resignification of gender and sexuality in India.” Transgender Studies Quarterly 5.3 (2018): 311-320.
  • Cheung, Pui Kei Eleanor. “Transgenders in Hong Kong: from shame to pride.” In Transgender China. Palgrave Macmillan, New York, 2012. 263-284.
  • Chiang, Howard H. “Liberating sex, knowing desire: Scientia sexualis and epistemic turning points in the history of sexuality.” History of the Human Sciences 23.5 (2010): 42-69.
  • Cho, Hae Lin, Marion Danis, and Christine Grady. “The ethics of uninsured participants accessing healthcare in biomedical research: A literature review.” Clinical Trials 15.5 (2018): 509-521.
  • Ciszek, Erica, and Nathian Shae Rodriguez. “Articulating Transgender Subjectivity: How Discursive Formations Perpetuate Regimes of Power.” International Journal of Communication 14 (2020): 19.
  • Connell, Raewyn. “Accountable Conduct: “Doing Gender” in Transsexual and Political Retrospect.” Gender & Society 23.1 (2009): 104-111.
  • Crozier, Ivan. “Pillow talk: credibility, trust and the sexological case history.” History of Science 46.4 (2008): 375-404.
  • David, Emmanuel. “Transpinay: Genealogy of a term.” Sexualities (2021): 13634607211024563.
  • Dietz, Elizabeth. “More Necessary than Medical: Reframing the Insurance Argument for Transition-Related Care.” IJFAB: International Journal of Feminist Approaches to Bioethics 13.1 (2020): 63-88.
  • Donovan, Kevin P. “The rise of the randomistas: on the experimental turn in international aid.” Economy and Society 47.1 (2018): 27-58.
  • Eder, Sandra. “Gender and Cortisone: Clinical Practice and Transatlantic Exchange in the Medical Management of Intersex in the 1950s.” Bulletin of the History of Medicine 92.4 (2018): 604-633.
  • Van Eijk, Marieke. “Insuring care: paperwork, insurance rules, and clinical labor at a US transgender clinic.” Culture, Medicine, and Psychiatry 41.4 (2017): 590-608.
  • van Eijk, Marieke. “Ideologies of self, suffering, and gender nonconformity at work in a US gender identity clinic.” Medical anthropology 33.6 (2014): 497-512.
  • Fisher, Jill A. “Governing human subjects research in the USA: Individualized ethics and structural inequalities.” Science and Public Policy 34.2 (2007): 117-126.
  • Fisher, Jill A. “Expanding the frame of” voluntariness” in informed consent: structural coercion and the power of social and economic context.” Kennedy Institute of Ethics Journal 23.4 (2013): 355-379.
  • Flanagan, Brigid M., Sean Philpott, and Martin A. Strosberg. “Protecting participants of clinical trials conducted in the intensive care unit.” Journal of intensive care medicine 26.4 (2011): 237-249.
  • Fox, Renée C. “Experiment perilous: Forty-five years as a participant observer of patient-oriented clinical research.” Perspectives in biology and medicine 39.2 (1996): 206-226.
  • Fraser, G., A. Brady, and M. S. Wilson. ““What if I’m not trans enough? What if I’m not man enough?”: Transgender young adults’ experiences of gender-affirming healthcare readiness assessments in Aotearoa New Zealand.” International Journal of Transgender Health (2021): 1-14.
  • Frigerio, Alessandra, et al. ““We’ll Accept Anything, as Long as She Is Okay”: Italian Parents’ Narratives of Their Transgender Children’s Coming-out.” Journal of GLBT Family Studies (2021): 1-18.
  • Gaudet, Joanne. “It takes two to tango: knowledge mobilization and ignorance mobilization in science research and innovation.” Prometheus 31.3 (2013): 169-187.
  • Geurts, Brogan L., and Timo O. Nieder. “Monopoly and Power Implications for Trans Health Care Specialists Working in a Centralised Setting: A Qualitative Study.” International Journal of Gender, Sexuality and Law 1.1 (2020).
  • Greenhalgh, Trisha, Jeremy Howick, and Neal Maskrey. “Evidence based medicine: a movement in crisis?.” Bmj 348 (2014).
  • Gross, Matthias. “Risk as zombie category: Ulrich Beck’s unfinished project of the ‘non-knowledge’society.” Security Dialogue 47.5 (2016): 386-402.
  • Hasselbalch, Gry. “Making sense of data ethics. The powers behind the data ethics debate in European policymaking.” Internet Policy Review 8.2 (2019): 1-19.
  • Herzog, Benno. “Can the Excluded Criticize? On the (Im) possibilities of Formulating and Understanding Critique.” Social Epistemology (2021): 1-12.
  • Heyes, Cressida J., and J. R. Latham. “Trans surgeries and cosmetic surgeries: The politics of analogy.” Transgender Studies Quarterly 5.2 (2018): 174-189.
  • Honkasalo, Julian. “The intimate labour of non-normative bodies: Transgender patients in early Swedish medical research.” In Bodily interventions and intimate labour. Manchester University Press, 2020.
  • Horbury, E., and C. Yao. “Empire and Eugenics: Trans Studies in the UK.” Transgender Studies Quarterly 7.3 (2020): 445-454.
  • Hubbard, Katherine, and Peter Hegarty. “Why is the history of heterosexuality essential? Beliefs about the history of sexuality and their relationship to sexual prejudice.” Journal of homosexuality 61.4 (2014): 471-490.
  • Huber, Lara. “Imaging the brain: Visualising “pathological entities”? Searching for reliable protocols within psychiatry and their impact on the understanding of psychiatric diseases.” Poiesis & Praxis 6.1 (2009): 27-41.
  • Irni, Sari. “On the materialization of hormone treatment risks: A trans/feminist approach.” Body & Society 23.2 (2017): 106-131.
  • Jarrín, Alvaro. “Untranslatable subjects: travesti access to public health care in Brazil.” Transgender Studies Quarterly 3.3-4 (2016): 357-375.
  • Kaptchuk, Ted J. “Intentional ignorance: a history of blind assessment and placebo controls in medicine.” Bulletin of the History of Medicine 72.3 (1998): 389-433.
  • Karhu, Sanna. “Gender Skepticism, Trans Livability, and Feminist Critique.” Signs: Journal of Women in Culture and Society 47.2 (2021): 295-317.
  • Keating, Peter, and Alberto Cambrosio. “Biomedical platforms.” Configurations 8.3 (2000): 337-387.
  • Kelly, Ann H., and Linsey McGoey. “Facts, power and global evidence: a new empire of truth.” Economy and Society 47.1 (2018): 1-26.
  • King, Nancy MP, and Larry R. Churchill. “Clinical research and the physician-patient relationship: the dual roles of physician and researcher.” The Cambridge textbook of bioethics 214 (2008).
  • Kingori, Patricia. “The ‘empty choice’: A sociological examination of choosing medical research participation in resource-limited sub-Saharan Africa.” Current Sociology 63.5 (2015): 763-778.
  • Kurland, Leonard T., and Craig A. Molgaard. “The patient record in epidemiology.” Scientific American 245.4 (1981): 54-63.
  • Lane, Riki. ““We Are Here to Help” Who Opens the Gate for Surgeries?.” Transgender Studies Quarterly 5.2 (2018): 207-227.
  • Latham, J. R. “Axiomatic: Constituting ‘transexuality’and trans sexualities in medicine.” Sexualities 22.1-2 (2019): 13-30.
  • Lubin, Joan, and Jeanne Vaccaro. “After Sexology.” Social Text 39.3 (2021): 1-16.
  • MacKinnon, Kinnon R., et al. ““I don’t think they thought I was ready”: How pre-transition assessments create care inequities for trans people with complex mental health in Canada.” International Journal of Mental Health 49.1 (2020): 56-80.
  • Mandlis, Lane R. “Human rights, transsexed bodies, and health care in Canada: What counts as legal protection?.” Canadian Journal of Law and Society/La Revue Canadienne Droit et Société 26.3 (2011): 509-529.
  • Melley, Timothy. “The Melodramatic Mode in American Politics and Other Varieties of Narrative Suspicion.” symploke 29.1 (2021): 57-74.
  • McGoey, Linsey. “Pharmaceutical controversies and the performative value of uncertainty.” Science as Culture 18.2 (2009): 151-164.
  • McGoey, Linsey. “Strategic unknowns: Towards a sociology of ignorance.” Economy and society 41.1 (2012): 1-16.
  • McGoey, Linsey. “On the will to ignorance in bureaucracy.” Economy and Society 36.2 (2007): 212-235.
  • Mesics, Sandra. “When Building a Better Vulva, Timing Is Everything: A Personal Experience with the Evolution of MTF Genital Surgery.” Transgender Studies Quarterly 5.2 (2018): 245-250.
  • Miller, Ashley, and Sarah Davidson. “Co-ordinating meaning within a gender identity development service: What can the theory of the co-ordinated management of meaning offer clinicians working with young people, and their families, exploring their gender identities.” Clinical child psychology and psychiatry 24.2 (2019): 322-337.
  • Miller, Franklin G., and Donald L. Rosenstein. “The therapeutic orientation to clinical trials.” New England Journal of Medicine 348.14 (2003): 1383-1386.
  • Miller, Franklin G., and Howard Brody. “A critique of clinical equipoise: therapeutic misconception in the ethics of clinical trials.” Hastings Center Report 33.3 (2003): 19-28.
  • Mitchell, Gordon R., et al. “Deliberative Stakeholder Engagement in Person-centered Health Research.” Social Epistemology (2021): 1-22.
  • Moreno, Jonathan D. “Convenient and captive populations.” In Beyond consent: Seeking justice in research (1998): 111-130.
  • Neri, Jessica, Elena Faccio, and Antonio Iudici. “Trans people’s attitudes and beliefs regarding the diagnosis of “gender dysphoria”: Research in the Italian context.” Psychology of Sexual Orientation and Gender Diversity 7.3 (2020): 316.
  • O’Shea, Saoirse Caitlin. “Cutting my dick off.” Culture and Organization 25.4 (2019): 272-283.
  • Pentney, Beth, and T. Garner. “Mapping the Surgical Landscape: Resonances and Divergences Between Theories of Cosmetic and Transsexual Body Modification.” Atlantis: Critical Studies in Gender, Culture & Social Justice 33.1 (2008).
  • Perez‐Brumer, Amaya, et al. “The wisdom of mistrust: qualitative insights from transgender women who participated in PrEP research in Lima, Peru.” Journal of the International AIDS Society 24.9 (2021): e25769.
  • Plemons, Eric D. “It is as it does: Genital form and function in sex reassignment surgery.” Journal of Medical Humanities 35.1 (2014): 37-55.
  • Polletta, Francesca. “Contending stories: Narrative in social movements.” Qualitative sociology 21.4 (1998): 419-446.
  • della Porta, Donatella. “Conceptualising backlash movements: A (patch-worked) perspective from social movement studies.” The British Journal of Politics and International Relations 22.4 (2020): 585-597.
  • Pretsell, Douglas. “The evolution of the questionnaire in German sexual science: A methodological narrative.” History of Science 58.3 (2020): 326-349.
  • Priest, Maura. “Transgender children and the right to transition: Medical ethics when parents mean well but cause harm.” The American Journal of Bioethics 19.2 (2019): 45-59.
  • Reiser, Stanley J. “The clinical record in medicine part 1: Learning from cases.” Annals of internal medicine 114.10 (1991): 902-907.
  • Reiser, Stanley J. “The clinical record in medicine Part 2: Reforming content and purpose.” Annals of internal medicine 114.11 (1991): 980-985.
  • Rich, Adrienne. “Compulsory heterosexuality and lesbian existence.” Culture, Society and Sexuality. Routledge, 2007. 225-252.
  • Richter, Brian. “Who Are You to Tell Me What I Need and Don’t Need: An Investigation of the Medicalization of Transsexuality in the Netherlands.” (2012).
  • Rotondi, Nooshin Khobzi, et al. “Nonprescribed hormone use and self-performed surgeries:“do-it-yourself” transitions in transgender communities in Ontario, Canada.” American journal of public health 103.10 (2013): 1830-1836.
  • Schmitz, Sigrid, and Grit Höppner. “Neurofeminism and feminist neurosciences: a critical review of contemporary brain research.” Frontiers in Human Neuroscience 8 (2014): 546.
  • Scott, Susie. “Revisiting the total institution: Performative regulation in the reinventive institution.” Sociology 44.2 (2010): 213-231.
  • Sertler, Ezgi. “Epistemic Dependence and Oppression: A Telling Relationship.” Episteme (2020): 1-15.
  • Sheridan, Desmond J., and Desmond G. Julian. “Achievements and limitations of evidence-based medicine.” Journal of the American College of Cardiology 68.2 (2016): 204-213.
  • Shotwell, Alexis, and Trevor Sangrey. “Resisting definition: Gendering through interaction and relational selfhood.” Hypatia 24.3 (2009): 56-76.
  • shuster, stef M. “Punctuating accountability: How discursive aggression regulates transgender people.” Gender & Society 31.4 (2017): 481-502.
  • Slagstad, Ketil. “Society as Cause and Cure: The Norms of Transgender Social Medicine.” Culture, Medicine, and Psychiatry (2021): 1-23.
  • Slothouber, Van. “(De) trans visibility: moral panic in mainstream media reports on de/retransition.” European Journal of English Studies 24.1 (2020): 89-99.
  • Soto-Lafontaine, Melisa. “From Medical to Human-Rights Norms: Examining the Evolution of Trans Norms in the Netherlands.” Politics and Governance 8.3 (2020): 290-300.
  • Sullivan, Nikki. “The Role of Medicine in the (Trans) Formation of ‘Wrong’ Bodies.” Body & Society 14.1 (2008): 105-116.
  • Sutherland, David Kyle. ““Trans Enough”: Examining the Boundaries of Transgender-Identity Membership.” Social Problems (2021).
  • Tunis, Sean R., and Steven D. Pearson. “Coverage options for promising technologies: Medicare’s ‘coverage with evidence development’.” Health Affairs 25.5 (2006): 1218-1230.
  • Verburgt, Lukas M. “The history of knowledge and the future history of ignorance.” KNOW: A Journal on the Formation of Knowledge 4.1 (2020): 1-24.
  • Victora, Cesar G., Jean-Pierre Habicht, and Jennifer Bryce. “Evidence-based public health: moving beyond randomized trials.” American journal of public health 94.3 (2004): 400-405.
  • Wahlberg, Ayo, and Linsey McGoey. “An elusive evidence base: the construction and governance of randomized controlled trials.” BioSocieties 2.1 (2007): 1-10.
  • Wiegand, Aaron. “Barred from Transition: The Gatekeeping of Gender-Affirming Care during the Gender Clinic Era.” Intersect: The Stanford Journal of Science, Technology, and Society 15.1 (2021).
  • Wilson, Christo, et al. “Building and auditing fair algorithms: A case study in candidate screening.” Proceedings of the 2021 ACM Conference on Fairness, Accountability, and Transparency. 2021.
  • Williams, Quintin, and Jill A. Fisher. “Captive to the clinic: Phase I clinical trials as temporal total institutions.” Sociological inquiry 88.4 (2018): 724-748.